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    August 24

    internaf group

    I can't imagine a more colorful description
    than the one you wrote of your spilled-coffee escapade. Thank you for
    brightening my day -- assuming that that was your intention. [Accept my
    sympathy, too -- for the loss of all that good coffee.] ¶ As for your
    question, whether to laugh or cry, I would offer my own reaction to an
    accidental fall [and what other kind is there?!]: "Why spoil a good fall
    by crying? Is there anything down here that needs to be picked up?"

    Faithfully, Bill
     This is a REPLY to an email that what sent to an our internaf group by quoram101 now thats funny. I am always so upset when I fall, I need t laugh instead of cry or be in pain! Some people in wheelchairs are pretty funny!

    Thank-you Nicole

    I have a lifeline on the internet a bible on the internet that has sound. I love the way names and cities are pronounced...I like it!!!!!Maybe my memory will come back in this old body of mine! If it doesn`t thats ok I can go here          http://www.biblegateway.com/     It gives me an outline to read the bible that makes senseI`m walking Jesus and it feels so good!  I`m walking to know God thru the internet.......
    August 17

    American Life Radio...

    OH MY GOSH! My door has been opened. I am no longer in a dark room, God has opened the door and I am in the light!!!! I feel elated happy joyous
    I am getting closer to God I am listening to a radio station called http://www.am830flr.org/default.asp family life radio. It as pratical common sense answers and Bible study. Watching  TV can be depressing with CNN Foxnews Praying for the Peace of Jeruslem and other events going on in the world. I like the songs and practicality of a radio station that believes in Jesus and talks about Jesus. WOW WOW WOW
    August 15

    INTERNAF.ORG

    Internaf conversation concerning Ataxia and the progression. Many people here have gone thru and clearly detailed there feelings which mirror my own Maybe thats why my confusion in handling things concerning family. I certanly don`t think bout the future because going there makes me depressed and anxious. What future...will I make it thru whatever indignities befall me....selfcare....will I can I ???   My  future is tied up with my husband, family , can I do Dr appts Dental appts school and school activities   Emergencies financial, all of that is untouchable by me I can`t control anything in my life......... I watch the world and do not participate now. I have not enjoyedlife for awhile, I just try and make it thru each day my days are black and white..........................a letter from ladyelf at internaf.org...................                                                                                                                                                                                         I  have always had a fear of the unknown and of change. I think it's
    human nature to a degree, but I think that the more sheltered one is,
    the more tangible that fear can be of trying to branch out beyond
    ones comfort zone and take a risk. As disabled in general, especially
    as people who are mobility disabled, that fact by nature leads to a
    sheltered existence and as such can make that an even more difficult decision.

    Consequently, though, our condition is all about change and the
    unknown, as we are all so individual that our progress varies.
    Certainly, for most people, fear of disability is often worse than
    the fear of death and here we are faced with conditions which
    progress over time, making us more and more disabled. Not only are
    our bodies changing, but we must make changes to our homes as well,
    and to our daily activities. So as such, one wants to cling to some
    sense of sameness, something that will not change Some of us may even
    move to where there are better doctors or clinics that are more
    familiar with our disease - I know I hope to one day, even as much as
    I fear change. But yes, kind of thing can be scary.

    Myself, I try not to think over much about what's down the road, and
    doing my best to concentrate on the now. And I'm getting a hefty dose
    of Carpe Diem that's entirely contradictory to that fear of branching
    outside of the box. I want to do things now while I can, because I
    don't know if I'll be able to later, or how soon that "later" will be
    that I won't be able to.

    Hugs & Blessings,

    Morgan
    lady_elf
    August 09

    wet cloudy day

    I am always watching cnn or fox news then back to cbn watching and praying for the peace of Jeruslem Lebannon the US....... It seems everything is escalating, God must be watching. I`m not afraid even for the future, if I wasn`t saved if I didn`t believe If I didn`t have Jesus in my soul  I`d be sleepless and scared. God is in control and things will happen the way God has planned not the way the world wants it....I see the families in so much grief and all I can do is pray for peace. Please God help the ones who are hurting. Rawanda-somalia-N. Korea so many nations so much hunger, disease  it goes on and on. I have noticed many many groups that have stepped up to physically and financially to help as best they can. I would like to be a part of the solution......will things ever change or are we doomed to live this way? I know when Jesus comes it will be better but in the meantime can we fix this mess we are all in? I pray for an answer , I need to be quiet and wait....Our Father which art in heaven hallowed be thy name

    OUR FATHER which art in heaven, Hallowed be thy name. Thy kingdom come. Thy will be done in earth, as it is in heaven. Give us this day our daily bread. And forgive us our debts, as we forgive our debtors. And lead us not into temptation, but deliver us from evil: For thine is the kingdom, and the power, and the glory, for ever. AMEN

    ( Matthew 6:9-13 )

    August 08

    when

    It has been a happening week, Eddie cracked 2 teeth friday repairs at 900.00 so far........ A pink slip came in the mail thursday TAXES DELINQENT pay or we will sell your house..... 666.18 more taxes due sept 1st,Eddie also wrote  check the same time the house payment was due 139.00 amd didn`t tell me........the housepayment is automatic thru checking and our current interest rate is low with auto BUT if we have insufficent funds they jack up the interest rate for the 30 yrs! In all fairness Eddie worked on a a friends car and they were suppose to pay that day for parts and were a week late. Jaylee has both eyes crossing and needs a patch[10.00] on the left eye and medication if we can`t get her to wear it, 3 hours every day for 2 months  apparently surgery may be in the works if this patch doesn`t help....Jarons school clothes and school stuff all on credit along with the teeth. I have recieved phone calls from people in the church about bible groups and other groups in there homes a couple times a week,,,,,I wouldn`t mind going but always a butat night my balance is gone when I can`t see-bathroom or homes wheelchair accessible-Eddie won`t go, and wants his dinner ready and doesn`t want to be stuck with the kids. He feels Jaron and I have "bitten of more than we can chew"because now we have to give alot of time to be baptised in the church. He would be upset with me if he knew I was sending money to God[tithing] He needs tools and wants a vacation. He says I`m getting obsessed with church and everything, in his eyes I can see  warning about saying too much about God...........ok so now what how do I handle this....like I always do read the bible and pray I have a huge mountain to get over come on feet 1...2....1....2 I can do it Lord give me stength and perseverance to see this thru
    August 03

    dr appt MDA

    I had a Dr appt with Dr Miller yesterday. Going downhill a little bit with my balance. I know all of my balance is in my eyes now, when I sit on the bed in the dark I fall off the bed!I can`t go outside without help and even then I have a few scares.....I feel as if I weigh 300 lbs and I`m dragging a big rock behind me My balance in my feet are gone and I hold my muscles clenched or flexed every step I take which probably accounts for the backache and charley horses at night. choking speech and shaking are now becoming a nusiance...........and les not forget the potty girl!!!! Every 15 minutes I go back and forth on the pot-wipe-panties up with jaylee.........its taken a toll tying to keep up with the minimalwork I do laundry cleaning cooking refereeing walk wak walk push push push struggle struggle struggle pray pray pray