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September 22 deja vu.....Another internaf conversation about things that happened to you as the disease progresses. This is why we get hurt with falls, you don`t know you can`t do things UNTIL you do it then BLAM!! Body parts are hurting you get up and you tell yourself I did that a month ago ok....now I can`t do that anymore! Sometimes it takes a few falls to remember and you don`t try that any more.....My problem is I remember when I could Trying to walk normal after standing still for a while ? Walking down an a slope and feeling you have better be careful where walking up the same slope is fine ? Get stiff rising from a sitting position ? (in the lumbar spine) ? Feel that words just dont come out very well in morning versus afternoon is better ? Have more Symptoms on gloomy days ?rather than Sunny days? Having Hypernasal speech Chewing of the inside of the cheeks when eating ?(one side more than the other ) Have saliva come out when you lay down in bed on your side ? Feel of balance when standing and looking up (need to hold on to something) Losing balance when walking one way and looking another ?(sideways) When losing balance like stumbling legs go stiff when trying to resume balance ? When Yawning and mouth wide open and coming shut the inside of cheek gets caught between teeth ? Doesnt snap back out of the way when it should. GEO September 13 helloI have been to busy to get online Jaylee has been sick but she is better now! I have also been reading the bible and listening to family life radio. Much is being learned! I came across bible chapters Matthew 27-28 that was new to me when Jesus died on the cross there was an earthquake and the graves were opened and many bodies of the saints that slept arose. And came out of the graves after his resurrection and went into the holy city and appeared unto many.... I don`t know why but that seems so important, it seems pertinent to my life in some way......kids are fighting needing........wish I had some time to study byebe September 03 MDAhttp://www.mda.org/research/060822fa_hdac.html maybe a miracle coming soon! Life is so difficult accomplishing goals but one place to make a difference of a few dollars contributed if a million people would give what a difference in accomplishing such wonderful goals. A cure for the babies that have to endure such horrendous diseases..I as an adult find myself overwhelmed if you read this blog go to MDA website http://www.mdausa.org/ an contribute! Be a part the miracle |
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